2025 RDAC Legislative Report

Utah Rare Disease Advisory Council
December 2025

The 2024-2025 report to the legislature of the Rare Disease Advisory Committee (RDAC) of the state of Utah contains RDAC’s purpose, background, executive summary and accomplishments. It details the actions of the following of RDAC’s workgroups:

• Legislative
• Stakeholders and Communications
• Data and Challenges

The report concludes with recommendations for the State Legislature and the Department of Health and Human Services.

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